Wednesday, May 30, 2012

The Panic is Back

It's because I haven't exercised in the last two and a half weeks. The tightness in my chest could be from skipping my asthma medication (I'm too freaking focused on getting stuff done that I frequently forget about myself) but chances are the following list is also, um, cause for the stress I feel:


-Wood will be gone for a week starting Saturday
-First grade is over in two weeks
-Summer camp plans are not 100% set and paid for quite yet
-My promotion at work is going to add a lot to my plate and I'm not sure I want the extra responsibilities
-My FMLA/OFLA request is not being denied, per se, but I'm definitely "schooling" my boss and the HR department in the law (yes, I have been living in Oregon for only a year and since no one has ever requested leave they're learning on my dime)
-The Green car (aka: Power Unit) broke down, is in the shop, and may, in fact, have a blown head gasket
-Grandma has been having some incontinence issues as of late, that kinda mucks up the morning routine
-The company that operates the buses that Grandma rides and broke her back riding a few weeks ago, has said that they don't believe that she got hurt on their watch. I'm having to fight them to file a claim
-I just hired an in-home care agency to do some of grandma's care. While great, it's an adjustment to have a stranger in my home doing things that I usually do
-Our tenant is not paying her rent (again) so we've started the eviction process (again)

The stress just melts away when I run hard, do push ups, squats, dips and burpees. Tomorrow night while I'm leading the group I'll curse the idea of running and any measure of strength training. But since I'm leading the charge, I'll have no excuse but to push myself, encourage the others, and be sure to keep an eye on the clock. I'll feel better for it in the end and because of burpees, this list won't seem so insurmountable. 

Tuesday, May 29, 2012

Hired Help

I did it!

Wood is leaving town for a week long work conference and my mom doesn't want to be just the housekeeper (bless her heart for doing so the last several trips when he was gone). Oh, yeah. I can't do a week alone with Twig, Grandma, and a full-time job.

I hired an in home care agency to come in and work with Grandma three days a week. It will be expensive but she can afford it. And it will most definitely take some of the burden off of us. Like tonight! Even though I didn't get to exercise because Wood needed the car to take Twig to his baseball game and the other car is broken down and I couldn't make it back to my office in time to meet people, it's already really cool!

Well, it is weird to be the one asking for and organizing the help - it's usually me doing the helping. But I must say that having someone else do her bathing, laundry, linen changing, and general companionship for a few hours a week will be wonderful!

That is all.


Monday, May 28, 2012

It's Not All Bad

Really.

There are some wonderful moments. There are times I'm completely absorbed with the beauty and wonder of life. Even amid the chaos that is our lives of working full time and being sandwiched between living with and caring for a first grader and my mother in law with significant dementia, finding the silver lining is what is keeping me semi-sane. Case in point: A week or so ago, Grandma was having some hallucinations. Being tuned in to his experience (that living with someone with Alzheimer's is inexplicable and rather scary), I pulled Twig into the bathroom to discuss this new thing that Grandma brings to the table. I explained that Grandma had just had a hallucination. "Is it real? Yes, to her it is." He's so my child - I read by his facial expression and the confusion in his eyes that he can't quite grasp the concept of something that he can't touch and feel being real in anyone's world. I explained that she had hallucinated that we have a cat. A black cat that was in the kitchen sink. It sounds like the perfect pet for us, right? After all, he and I both want a cat. Why not see the good part of it? Innocent hallucinations are much better than their opposite. But I won't explain unpleasant hallucinations to him until it's absolutely necessary.


Am I grasping a straws, trying to make this, my life, work, by trying to find the goodness in anything bad? Wood is struggling to maintain his objectivity. Particularly when I focus on the good things - that I have a good job (so what if my boss is a bit inexperienced and misguided?), that I've met a lot of great women (and feel as though I have friends here). He spends time focusing on what he doesn't have instead of making what he does have great and knowing that someday in the not too distant future it will be completely different than now. It is a challenge for me to be gentle and supportive of him during the times he's having a temper tantrum and taking it out on everyone else. I don't have the luxury of getting into the kind of self-pity that holds me down for more than a small portion of the day. The pie is so big and heavy that it will spoil or fall flat on the floor exceedingly quickly - I can't afford to take my eyes off of it for a second too long. So I focus on finding the sweet topping of my reality.

A friend of mine, actually she's more of an acquaintance, told me the other day how supportive a wife I am. That she can hardly believe that we're taking care of grandma. She told me how she'd lived with her in-laws (with 11 other people) for a while and despite the cultural appropriateness of her situation, how challenging it was for her. She talked about how it pushed the limits of her marriage. How at some point along the way she had to tell her husband that he had to choose her first.

She also likened the relationship with in-laws to that of a step-parent/step-child relationship. It's true for me. I want to love her like she's my mom. But she's not. She's my husband's mom. I feel obligated to love her because she's his mom. Because she loves him the way my mom loves me. Because he loves her the way I love my mom. Because I love him; the contract that he and I entered almost 10 years ago didn't state "for better, for worse; in your sickness or health".

So I revel in the fact that grandma sleeps in on the weekends, that for all intents and purposes she really is rather easy to have with us. Sure, it's like having a baby around in that you need to anticipate every single need. But she hallucinates that we have a cat. And I really want a cat.

See, it's not all bad. 

Monday, May 21, 2012

I Get That This is Not a Sprint To The Finish Line

The Little Engine That Could keeps coming to mind this week and I find myself repeating his mantra "I think I can, I think I can, I think I can."

Truth is, I'm kinda having a pity party today. It's Monday. I don't want to be at work today. We had a busy weekend with Twig's activities and a rough weekend with Grandma's back (did I tell you she's got a fractured spine?). Wood and I finalized the weekend with a date night but I'm beat and could really use a day off.

Instead, I keep toiling away at the tasks that consume my mind at the moment. Personal tasks at work. Work tasks at home. Grandma tasks. Twig tasks. All combination of tasks.

The list of things I need to do is buried somewhere in my pile of papers. I'm not a Pile of Papers kind of gal so this new chapter in our lives - the one where there's too much for us to reasonably get done in a normal day - is rather challenging. I can barely plan for tomorrow much less for the week, the month, the year. And it's like that in all areas of my life.

I think I can get out of bed today. I think I can get out the front door. I think I can negotiate work life at the office. I think I can keep from crying as I ride the bus. I think I can simplify, simplify, simplify. And if I can do that, life will be a lot easier.


Sunday, May 13, 2012

Baby Monitor

Grandma got hurt last week while riding the bus. She has a fractured spine. Poor lady. She's in lots of pain and was taking Vicodin for the first few days.

Since one night there was a mishap because we couldn't hear her, there's now a baby monitor in her room. It's a good thing so we can hear if she needs help.

But I can't sleep!

She talks on the phone, sings, claps and has a generally good time there in her room, in her bed, sleeping.

Last night I woke up at about 2 am and couldn't fall asleep until 5 am when I turned that monitor off! Between her in the monitor and Wood snoring in my other ear, I just couldn't take it any more!

It reminds me of when Twig was a baby and I heard every move he made in the night. Yes, I'm exhausted like that today.

Yawn!

Thursday, May 10, 2012

Leading Up to It...

Grandma and I are at the Day Spa today getting our every other month mani-pedi on. The massage chair is comfy, the water is warm, the pampering devine. She is next to me but requires only minimal interaction or prompting to answer questions or state her needs. It is one of those activities that is relatively responsibility free.

The place is busy. It's Saturday afternoon. There is a very pregnant woman getting a Pedi alongside her friend and a mother of two girls, probably 3 and 7 years old, getting her nails done while the girls quietly chat up the manicurists, negotiate with Mom for something and appropriately bee-bop around the room. I barely notice them actually, save the moment the 7 year old came up to my chair and mistakenly took my bottled water thinking it was hers. She said something like "oh, I thought it was mine!' and retraced her steps to her water not too far away; they're very well behaved children.

I stared at the pregnant woman sitting as she climbed into her chair and as she settled herself in, her manicure beginning; the manicurist pulled me from some deep dark place I had gone and asked me if I was okay. I nodded "Yes" and smiled that smile one smiles when trying to convince the other person and themself that they are, in fact, okay.

The article I'm reading, "Winning Children Over," isn't keeping me from that deep dark place. It is taking me to that place where dissapointment, regret and shame live. They are right next door to tears, and they are always ready to ring the doorbell and ask if tears can come out to play. Out on the playground and all together they are a tough group to control. It is not a place of self-acceptance, nor is it full of energy for problem solving, thought or action. It is a sad, lonely place I visit all too often lately.

It's no secret that my pregnancy with Twig was not easy. It started with incredible self-doubt and fear, bleeding bright blood in the first month, significant weight loss in the first trimester, terrible colds turned infection with heavy duty medications required to be able to breathe, awful swelling of my feet (gained 2 shoe sizes), calcium deficiency and the requisite 20 lbs gained in one month from eating Ben and Jerry's Toffee Heath Bar Crunch to the tune of 3 pints a day. Thank god I didn't aquire gestational diabetes or other awful maladies.

In retrospect my water broke the Friday before he was born. I ignored it. Or maybe I didn't really have a clue what was going on with my body. About 30 minutes after the first gush of water from in between my legs, it happened again. Alright! I ignored it.

The following Tuesday, the day I predicted he'd arrive (two days before my actual due date), at about 2 in the afternoon, the contractions began. I ignored them. Jason was at work and since he was probably busy, and the contractions weren't much more than a nuisance, I went about whatever it was I was busy doing - laundry, organizing, whatever...

At dinner I casually mentioned that they had started earlier that afternoon but I wasn't concerned, they were very light and completely manageable. Through the evening they continued to get worse and at about 9 (maybe 11pm) we called our Doula. I labored at home for several hours with no real progression of labor. After a nap, we woke in the morning, went out to eat at Rick and Ann's in Oakland/Berkeley (where I cried over my corned beef hash that wasn't too good), took a walk, and still nothing.

Later Wednesday afternoon found us at the hospital. Dilated to 5c. Admitted. And then my labor stopped. And then I was given an epidural, and then pitocin, and then my child's heartbeat was noted as decelerating every time I had a contraction. I needed to have an internal fetal monitor. I had extreme pain in my left kidney for no known reason. I needed oxygen. My cervix swelled once it reached 8 or 9c dilated. Then, on Thursday afternoon, Dr. 'Gayest Heterosexual OB/GYN on the face of the earth' came in to check me out. He looked at me and said, Wonelle, it's time to get this baby out. Where I had been consulting my team of Hubbie and Doula all along, there was only me and Doc at that point. I was inverted (hips above heart) told to breathe the oxygen in deep, and coached along, bear down when I get to one and hold for a count of 10. I don't remember anyone but the doctor being there as he put a suction cup on the baby's head - it popped off as he pulled and I think he cursed (his face was red from the exertion or frustration, maybe the combination of the two) - he put it on again, pulled some more and then yelled "Meconium! WHO KNEW?" Thursday September 30th - more than 48 hours later. If you consider that my water broke the Friday before he was born, I had a 6 day labor.

They suctioned him something feirce as he came out of me and Wood quickly cut the cord. The nurses whisked him away to do their thing. More suctioning, a low APGAR score, more suctioning, rubbing, a normal APGAR score, cleaning and wrapping and then I saw him. The first thing that went through my mind was "He hates me." What a self-fulfilling prophecy that thought has become.

He was exhausted after birth - until the day we took him home. He screamed inconsolably for what I recall as hours of us being highly stressed and completely dumbfounded. He stopped after he nursed and when I bounced him - so I nursed him or bounced him for three long years. It was the only way I could get him to sleep. At roughly a year old, he wouldn't nap unless it was pitch dark or I was driving 70 miles per hour. I remember calling Wood one afternoon absolutely infuriated that I had invested about 40 minutes of bouncing the boy, holding him in the sling, and him waking up about 20 minutes later. The return on investment was so lopsided.

He started crawling at roughly 7 months old, walking and talking at 9 months old and despite his genuinely happy demeanor he was a terror - by terror I mean climbing on things, pulling curtains off their rods, emptying everything from everywhere in a matter of minutes. I could not leave him alone in any room in the house. He'd remove everything from everywhere - all of the books off the shelves, clothes out of the drawers, nick-knacks off the dresser tops AND he'd be knee deep in the dangerous stuff within 90 seconds of my being out of his line of vision. He has always been a master at any and all child locks.

Restaurants were tough but I always brought things to keep him occupied. Of course I always needed to be directly involved with him because if I wasn't, he could be throwing silverware across the room before I knew it. He talked incessantly, interrupted everyone, and charmed the pants of all of the servers we came across.

The only time the kid was slightly contained was when he was in front of the television. And yes, I gladly used The Backyardigans, Dora the Explorer, Sesame Street, Teletubbies, and a whole host of other cartoons to get to the most banal activities like taking a shit in private. It was my only respite some days, and given the degree of my postpartum depression, I needed a fair amount of cartoon time.

As he got older, I became more and more frustrated with the lack of napping and would get ANGRY when he wouldn't give in to my need for him to sleep. He wanted to continue playing. I needed a break. I didn't get it. I would sometimes slam doors, yell at him, and stomp around in the same fashion I was used to from my mom as a kid. And hate myself for it afterward. It would take such a long time for me to come down from my ledge.

Every now and again, I'd ask him to do something and he'd rage at me. Get out of the car after school at the end of the day; put the shoes in the basket as we walk in the front door; change clothes. He'd pick up something - usually the most dangerous toy (when thrown) and chuck it at me. He once threw a book that nearly got me in the eye. There are countless other examples of his rage, and my inability to do much about it. There were times I'd look at him and think that maybe mental illness skips a generation - because this kid is crazy - up an down like a freaking roller coaster.

We hired an LCSW at one point when things were out of control and we seemed to be struggling with everything related to the boy. She was a fine therapist, I'm sure, but she was exceedingly expensive at something like $225/hr, she always ran over the scheduled time, and was focused on "gathering information" when I said I needed TOOLS. I fired her not long after she said that one of the boy's behaviors wasn't normal. For all of those reasons.

For a long time, Twig was able to contain his willfulness, rage, and cyclone tendencies to home. As he ventured into other social arenas, however, it became clear that I wasn't the only person that found him challenging. His preschool teachers of school number one and school number two, with an average of 15 years experience, would get flustered by his unwillingness to follow instructions and rules, his ability to constantly argue very particular points, his lack of understanding of personal space/boundaries, and his boundless energy. I always felt guilty that I looked forward to Mondays. But I did. I do.

In Kindergarten, he was quickly labeled by Ms. Mary Grace (a public school teacher with a serious Catholic school bent) as an immature overacheiver. Bright but not working to his potential. Skilled at working the room but always blaming other people for his mishaps. Once when she told him to write his name on the white board where she kept track of "bad" behavior, he simply erased everyone's name. After all, she wasn't really paying attention and he knew it.

Then we moved and I was sure that things in school would get better. And they did. His teacher pushed him to work to his potential. She worked with him on his focus and energy, working to be a part of the community. To adjust to a new state, a new school, new rules, new learning. I, on the other hand, took the full brunt of his frustrations and challenges. His stress level was high and things began to get really ugly again.

One morning before school he didn't want to do something. Brush his teeth, wipe his bum, get dressed, eat breakfast, who knows? His rage began and was directed at me. Throwing things, slamming doors, hitting me, you name it. I tried everything. Walking away - he'd follow me. Sequester myself in my room - he'd literally break down the door. Walk into the other room - he'd throw things at me. Sit on the couch with my face in my hands - he'd punch me, kick me, scream at me, call me names that shouldn't come out of such a young child's mouth. And YES, I know he gets his cussing like a sailor from me. I don't give a fuck what he says. But that's not the part that sticks with me. On this day, after being hit, kicked, punched, had things thrown at me, expletives directed at me, for more than an hour,and doing the right thing over and over and over again, I kicked him. And he stopped. Finally.

The summer was difficult - every transition to a new summer camp created similar difficulties. But as  soon as I was sure I was going to completely fall apart, he'd re-calibrate, get his shit together, and become manageable again.

Then grandma moved in with us. She's got Alzheimer's. She moved into his room. He moved into ours. We all hated the new arrangement. We resisted her being with us. Wood and I were angry. Then we moved. On Twig's birthday. And he became angry. And it began again - the anger and rage directed at me. Then at Wood. But it was more than the anger. It was the outright disdain, hatred, desire to hurt someone that scared me most. Like when he'd cock his arm, with his chin low, his eyes pulled together like that of the absolute meanest villain you've ever seen, his fist tight, and then swing it - at my face. Where he'd once kept it at home, he during the same timespan attacked and punched his best friend on the playground over a soccer ball. He threw a ball at a much younger kid's face during a game of dodgeball (that he was losing) in aftercare. He antagonized kids in class by humming, knocking things over, and calling them fat, ugly, and other mean things.

At his 7 year well child visit with his amazing boy-doctor, he said "sometimes I have a hard time controlling my body" and when I responded "yes, we do have challenges - he's not two anymore - I can't just pick him up and carry him out of the restaurant anymore". The doctor immediately got it and referred us to a developmental pediatrician for an assessment.